Leading applicant:

Fondazione IRCCS "Istituto Nazionale Tumori", Analytic Epidemiology and Health Impact Unit (INT)

Contacts:

Roberto Lillini (roberto.lillini@istitutotumori.mi.it)

List of cancer registries sending data on breast cancer cases to the coordinating center

Cancer Registry Country Period Status Incidence period Nr of cases
Age:0-49
Varese Italy May 2018 First analysis sent to registry 1996-2012 2679
Ragusa Italy Sep 2018 First analysis sent to registry 2001-2012 515
Umbria Italy Oct 2018 Expected integration of data 2001-2013 2008
Siracusa Italy Oct 2018 First analysis sent to registry 2004-2013 587
Parma Italy Nov 2018 First analysis sent to registry 2001-2010 424
Napoli 3 South Italy Jan 2019 First analysis sent to registry 2008-2015 1514
Palermo Italy Mar 2019 Expected integration of data 2005-2014 1914
Alto Adige Italy Mar 2019 Expected integration of data 2004-2013 747
Trapani Italy Apr 2019 Expected integration of data 2002-2011 575
Lithuania Italy Apr 2019 Ongoing analysis 2001-2012 3797
Northern Portugal Portugal Nov 2018 First analysis sent to registry 2003-2012 5561
Central Portugal Portugal Apr 2019 Ongoing analysis 2001-2011 3715
Basque Country Spain Sep 2018 First analysis sent to registry 2005-2014 3512
Granada Spain Sep 2018 First analysis sent to registry 2004-2013 1245
Navarra Spain Nov 2018 Ongoing analysis 2004-2013 1057
Girona Spain Jan 2019 Ongoing analysis 2001-2010 993
Castellon-Valencia Spain Feb 2019 Ongoing analysis 2004-2014 936

List of cancer registries collecting data (analysis will not be performed by the coordinating center)

Cancer Registry Country Period Status Incidence period Nr of cases
Age:0-49
Gironde France Mar 2019 Data collected 2008-2015 2308
Poitou-Charentes France Mar 2019 Data collected 2008-2015 2513
Loire-Atlantique et Vendée France Mar 2019 Data collected 2006-2015 3621
Haute Vienne France Mar 2019 Data collected 2009-2015 477
Calvados France Mar 2019 Data collected 2006-2015 1285
Manche France Mar 2019 Data collected 2006-2015 831
Somme France Mar 2019 Data collected 2006-2015 1018
Lille et sa région France Mar 2019 Data collected 2008-2015 1286
Bas-Rhin France Mar 2019 Data collected 2006-2013 1654
Haut-Rhin France Mar 2019 Data collected 2006-2015 1253
Doubs et Territoire de Belfort France Mar 2019 Data collected 2006-2015 840
Cote d'Or France Mar 2019 Data collected 2006-2015 891
Isère France Mar 2019 Data collected 2006-2015 2223
Hérault France Mar 2019 Data collected 2006-2015 2075
Tarn France Mar 2019 Data collected 2006-2015 672
Guadeloupe France Mar 2019 Data collected 2006-2015 n.a.
Martinique France Mar 2019 Data collected 2006-2015 n.a.
Schleswig-Holstein Germany Apr 2019 Data collected 2001-2015 7513

List of adhering cancer registries (CR)

Cancer Registry Country Wasaby referent Status at 15 Jan 2019
Gironde France Marc Colonna for all French CRs French CRs will not send data to the coordinator center but they will share results and methods of spatial analysis
Poitou-Charentes
Loire-Atlantique et Vendée
Haute Vienne
Calvados
Manche
Somme
Lille et sa région
Bas-Rhin
Haut-Rhin
Doubs et Territoire de Belfort
Côte-d'Or
Isère
Hérault
Tarn
Guadeloupe
Martinique
Bremen Germany Sabine Luttman Waiting for Ethical Committee approval
Schleswig-Holstein Germany Ron Pritzkuleit Schleswig-Holstein CRs will not send data to the coordinator center but they will share results and methods of spatial analysis
Napoli 3 South Italy Mario Fusco e Francesca Maria Vitale Sent all data
Palermo Italy Rosanna Cusimano Sent all data. Check for improve x&y geo-coding in part of the cases
Parma Italy Paolo Sgargi Sent all data
Ragusa Italy Rosario Tumino Sent all data
Siracusa Italy Francesco Tisano Sent all data
Trento Italy Silvano Piffer Waiting for Ethical Committee approval
Trapani Italy Giuseppa Candela & Tiziana Scuderi Sent all data. Geo-coding process started at INT
Alto Adige Italy Andreas Bulatko Sent all data but geo-coded at municipal level. Now trying to give address at incidence date
Umbria Italy Fabrizio Stracci Sent population data and shape files.
Waiting for patient geocoding in 2001
Varese Italy Giovanna Tagliabue & Paolo Contiero Sent all data
Lithuania Lithuania Ieva Vincerževskien Sent breast cancer data, population data and shape files. Waiting for deprivation index data
Polish National Cancer Registry Poland Krzysztof Czaderny Polish CRs will not send data to the coordinator center but they will share results and methods of spatial analysis. They are cordinated by the Polish National Cancer Registry, who is a collaborator of the WASABY Project. Ethical Committee approval obtained
Greater Poland Poland Maciej Trojanowski
Kielce Poland Ryszard Mezyk
Silesia Poland Marcin Motnyk
Central Portugal Portugal Joana Bastos Waiting for administrative permission to send data
Northern Portugal Portugal Luis Antunes & Maria José Bento Sent all data
Slovenia Slovenia Vesna Zadnik Definition of methods to be applied for spatial analysis
Basque Country Spain Nerea Larrañaga Sent all data
Castellon-Valencia Spain Paloma Botella Sent breast cancer data, population data and shape files. Waiting for deprivation index data
Girona Spain Rafael Marcos-Gragera Sent breast cancer data, population data and shape files. Waiting for deprivation index data
Granada Spain Maria José Sanchez Perez Sent all data
Murcia Spain Maria Dolores Chirlaque Data collection ongoing
Navarra Spain Marcela Guevara Sent breast cancer data, population data and shape files. Waiting for deprivation index data
Northern Ireland UK Anna T. Gavin & David Donnelly Sent population and shape files.
Waiting for data transfer aggrement signatures for breast cancer data